Caleb had to go to the doctor today because he has been feeling lite headed and feeling like he was going to pass out. I pick him up early for from school, we get to the doctors office check-in and all that good stuff. Caleb knows what to do because he is a pro at seeing doctors, since Caleb has CF (Cystic Fibrosis). Well the CF Clinic already tested him for diabetes to rule that out, and now they wanted him to go to his regular doctor. We tell the doctor everything that has been going on with Caleb, all the symptoms, lack of other symptoms, and so forth. The doctor then calls the nurse in to do a EKG, after the EKG they set up an appointment for Caleb to have a heart monitor for a month so that the doctor can keep track of Caleb"s heart when he is having these "episodes". I come home to tell my husband what the doctor thought and my husband acts like he is upset with me because I didn't tell the doctor that was crazy and there was nothing wrong with Caleb's heart. I tell my husband we do not know if there is nothing wrong with Caleb's heart and although you may think this all has to do with low sodium, we do not know for sure. I understand Caleb is upset having to wear a heart monitor, I understand the child has went through a lot. I get this because I have been the parent taking care of him. My husband does not remind Caleb to take his medicine except his Creon 24 (enzymes he takes before meals and snacks) he does not go with me to take Caleb to any of his doctors appointments. Heck Caleb's doctors have only met my husband once and that is when Caleb was in the hospital having surgery. I do this shit by myself, it is Caleb and I against the world. I do not have family that I can lean on for support, I do not have friends to lean on for support, I do not have time to be apart of a support group for support. So that is why I started this blog. Instead of me blowing up or bottling it all up I can get on here and type out what I am feeling. If there are other people that can relate all the better. But this gives me a place to blow off steam so that I can get up the next day and do it all over again.
For those that read this, thank you.....
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poor baby! i can't imagine being in either one of your shoes. I can can relate to the man thing. the only appt Will went to, I had to send a long note explaining why he was there and what needed to be done. hopefully Caleb gets some great results out of everything
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